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Planning for a Disabled Child's Needs

Feb 23, 2024

What you should know

Planning for a disabled child takes special consideration, especially in terms of estate planning. To be sure your child is cared for the way you would like, you need to get your affairs in order. By following the steps outlined below and consulting with a qualified professional who can help you design a plan that meets your unique situation, you can be assured your child will be well cared for if you die or become incapacitated.


Step 1. Create separate files for yourself, your spouse/partner and your child.


Each file should include the following:

  • Birth certificate
  • Social Security card
  • Medicare, Medicaid information
  • Other health and long-term care insurance information 
  • Banking information
  • Copies of legal documents such as a will, health care directive and power of attorney
  • Life, automobile and other insurance policies
  • Deeds and mortgage documents
  • Marriage, divorce and death certificates (as relevant)
  • Military service records
  • Titles to real estate, automobiles and other property.
  • Information regarding funeral arrangements.
  • List of bank and brokerage accounts, including account numbers and detailed information about assets and liabilities
  • List of usernames and passwords
  • List of doctors, medications and allergies; details regarding medical history, etc.
  • List of emergency contacts, including contact information for the individual you wish to care for your disabled child as well as the counselors, mental health professionals and others who work with her/him
  • List of professional advisers (e.g., accountant, attorney, financial adviser, insurance broker)

Step 2. Write a letter of intent.


While a letter of intent is not a binding legal document, it is a valuable road map for outlining the life you would like your child to live. The letter of intent should outline your child's daily, weekly and monthly schedules as well as her/his likes and dislikes. It should also list the child's medications and allergies, etc. In addition, the letter should name the people you would like to be part of your child's life as well as anyone you would like to keep your child away from. The letter of intent should be updated annually and kept with your other estate planning documents.


Step 3. Begin the financial planning process.


Planning for funding your child's future needs is another important aspect of planning for her/his future. Your personal financial circumstances will dictate your planning, but it is important to consider these items:

  • Government benefits may be an important part of your plan. Be sure to document what and how much the child receives as well as how the funds are used. Other aspects of your financial plan may affect these benefits, so be clear about the parameters you need to work within.
  • Be sure your will names a trustee and a guardian.
  • Create a special needs trust. Once it is created, you can make the trust the beneficiary of your life insurance policy, etc., without impacting her/his government benefits.
  • Establish an Achieving a Better Life Experience account, which is a tax-advantaged savings account for individuals with disabilities and their families.). These contributions generally are not tax deductible for federal tax purposes, but some states allow a deduction.


Step 4. Plan for when your child becomes an adult.


Children become legal adults when they turn 18. This status comes with responsibilities and privileges such as the right to make their own health and financial decisions. Not all disabled children are able to assume these responsibilities, which makes it important for you to consider options such as legal guardianship or power of attorney. If the child does not consent to your retaining power over her/his decisions, a court may have to decide.


This article contains a brief overview of some items that must be considered if you have a disabled child. The goal is to have a plan in place that will ensure your child has the kind of life you wish for her/him in the event you die or become incapacitated. The best thing you, as the child's parent, can do is consult a tax and estate planning professional, like Nash Bean Ford and Brown, LLP, who can help strategize a plan that considers the child's unique issues as well as your financial situation. Give us a call today at 309-944-2188 for more information or to set up your free estate planning consultation!

03 Apr, 2024
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27 Mar, 2024
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Medical decisions are highly personal choices, and they are relatively easy to make when your mental faculties are still with you. But with the possibility of illnesses that can rob you of your decision-making skills, how do you know that your personal wishes are being considered while family members are calling the shots about your healthcare? Before you are unable to establish these decisions in writing, it is important that you do all you can to protect yourself. Let's take a closer look at some of the most basic options. Living wills. The first step in the process is to make sure you have a living will in place. This document describes all of the things that are most important for you in terms of care when you are unable to make those decisions for yourself. The most basic information includes whether or not you want to be resuscitated or kept on life support. But it can go beyond that as well, up to and including what kind of funeral arrangements you would like. Medical power of attorney . Going hand in hand with the living will is your medical power of attorney. For most people, your spouse will automatically be the individual with whom medical facilities and professionals consult in the event that you cannot make your own decisions. But there may come a time when this is no longer possible. Selecting someone you trust to make these decisions for you can be critical to ensuring that your wishes are met. Advanced directives . In some states, these two things are combined to create a single legal document called an advanced directive. This is why it is important to work with a legal expert to make sure that you are creating and signing the correct information. Direct conversations. Beyond all of the legal documents that will help cement your wishes for the future, it is essential that you begin having conversations with your loved ones long before you have the need for invasive care. It can be uncomfortable, to be sure, but it is necessary. Talk to your spouse, your children, your siblings, or anyone else who may be involved in your long-term care or future medical interventions. Have you considered the planning for your living wills or medical power of attorney? Call the experts who can help you work through this process and provide peace of mind for your future.
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When the Titanic went down in 1912, several women chose to remain on board and drown with their husbands; most famously was Ida Straus, whose family co-owned Macy's Department Store. Although Titanic-scale disasters are extraordinarily rare, you should nevertheless include a contingency beneficiary in your will or trust in case life or death throws you a curveball. The contingent's role If primary beneficiaries are unable or unwilling to receive an asset left to them in a will or trust, the next-in-line contingent steps in. The primary might be unlocatable or dead. Contingent beneficiaries serve a similar function when it comes to life insurance and bank, security, retirement, college savings and health savings accounts. In some states, even vehicle and real estate owners can designate contingents. While family and friends are typical recipients, contingent beneficiaries can be people, organizations, estates, charities or trusts. However, note that minors and pets cannot assume the role, because they have no legal power to accept assigned assets. A child requires a guardian for the assets; pets would require a trustee to administer funds for their lifetimes. All the primaries must be dead or have renounced their share before distributions are made to contingents. If one primary dies, though, the assets are divided among the other remaining primaries. Why you should name contingents You can avoid the time and expense of probate by specifying contingents. Rest assured that they have no rights over your assets while you are alive and may not even realize they are beneficiaries. Unless an account is irrevocable, you can freely change them. In fact, you should regularly review your estate plans, including your contingents, to confirm they are up to date with your life events — births, deaths, marriages, divorces, etc. For example, after a divorce, children who were formerly contingents may now become primaries. Or you may simply have a change of heart, which is entirely permissible. You can also attach strings that a primary must meet before they receive an inheritance from you. Preconditions run the gamut, from graduation to religion to marriage to staying out of jail to giving up smoking! If the person you select to inherit ends up as a chain-smoking jailbird, a contingent beneficiary might take his or her place. Many testators also select a favorite charity or nonprofit as the ultimate contingent. Rather than four or five heirs down the pecking order, they prefer to designate a church or college over some distant family member. Facing Armageddon Back to the Titanic. It is not unusual for spouses or family members to die in rapid succession, albeit rarely in ocean liner disasters. Still, airplane crashes and highway pileups happen. Adding to the turmoil, parties might have named each other as reciprocal primary beneficiaries. To preempt inheritance chaos, attorneys use Titanic clauses, particularly for high net worth clients, those with young children or those in second marriages. Also called an "all dead" clause, it kicks in if all your primary and contingent beneficiaries die in one swoop. Here again, nonprofit institutions could outlast everyone. Couples in second marriages may also own property with joint rights of survivorship, meaning a house might arbitrarily end up with the children of whichever parent is assumed to have died second and thereby cut out the step-siblings. Many states rely on the Uniform Simultaneous Death Act, which essentially provides that if two people die within 120 hours of one another, each will be deemed to have predeceased the other. In other words, their respective estates are allowed to pass assets to heirs as contingents rather than transferring them back and forth as primaries, which could theoretically involve multiple probate processes. This explains why many wills mandate that a beneficiary survive the will writer for a certain time period, up to several months. The consequence is that the asset passes as if the original beneficiary had died first and the legacy goes straight to the contingent. It may help preclude extra estate taxes or extra rounds of probate.  Consult an estate lawyer or a financial planner about shoring up any estate documents to include contingent beneficiaries and keep them up to date.
06 Feb, 2024
Who's responsible for valuation of assets? If you're the executor of an estate, part of your job is to oversee the valuation of assets. Finding out how much the estate is worth and how that value is distributed will determine your approach to probate, the allocation of the assets among the heirs and how much the estate will pay in taxes. Particularly with larger estates, valuation can be a substantial responsibility. It may require you to bring in experts to value antiques and other collectibles. If the estate is undergoing probate, you'll need to submit the asset values to the court. Probate rules for estate valuation vary somewhat by state. In some states, courts look at gross estate value; in others, at net estate value. Some have separate rules for smaller estates. While all personal property is probated in the decedent's home state, real estate is probated in the state in which it's located. Some assets, such as 401(k)s that have beneficiary designations, normally bypass probate. Expect to be challenged — by the IRS, by heirs, by creditors or by the court — whenever you value assets. Be sure you're valuing everything reasonably. Certain types of assets are easy to value. The contents of a bank account or shares of stock in a publicly traded company won't give you any trouble. To value a stock, commodity or precious metal, average the highest and lowest selling price for similar items on the owner's date of death. For mutual funds, use the closing valuation. Other assets — a used car or collectible, for example — don't have such a definitive value. You estimate their value by using public references for collectibles. When valuing real estate, you can check out the tax assessor's valuation and talk to a real estate agent about sales of comparable properties. Go with the pros For assets that are really difficult to value, like artwork or a private business, you'll probably need to hire a professional appraiser. Appraisers typically charge from $125 to $400 an hour, often with an extra charge for visiting the site. Avoid appraisers who charge based on a percentage of the asset's value. This goes against the ethics of the Uniform Standards of Professional Appraisal Practice. Ask whether the appraiser has any certifications or memberships in professional organizations, and ask for a written estimate of the appraisal fee in advance. Books, tools and appliances are among the items that can be listed as household contents, and you can ask for one overall valuation estimate for them. If there are individual items that were specifically bequeathed in the will, you may want to get an individual appraisal for each. The value of household items should be done based on what a buyer would pay for the items as is. The heirs may decide to sell everything in an estate sale. In that case, use a reputable estate sale company. Descriptions and values should be seen as general guidelines because there are variations in quality and condition as well as changes in economic conditions and local demand. As you proceed with the valuation, be aware of the pitfalls. Heirs may be upset if a particular asset doesn't realize the value they expected. Document your work in case there are questions later, and work closely with legal and financial professionals as you move forward.
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